Guest post from Elizabeth A.
Amaris, her mom, and I flew to Mexico June 26, and they spent the rest of the summer there. After my time with them, various ones of their family members took turns coming down to help: Ezra, then Amaris’ dad, then Pearl and cousin Candace. August 17, the young ladies went home and I flew down again. Then Amaris, her mom, and I all returned to the States August 28.
This post includes pictures from my second time with them and notes about some of the events of those days.
Friday, August 18, 2023 update for friends:
Whoever is down here with Amaris at any given time feels every moment his/her complete dependency on the Lord. And we’ve found Him to be so, so faithful. We daily count the miracles and blessings and answers to specific prayers….
Yesterday, we were all exhausted (all day) but when it was time to come home from the clinic, I knew we had to have God’s extra strength. Though Amaris does help some with pulling up to us when moving from bed to wheelchair to car, etc., she is weaker than last time I was here. We knew we would be loading her into a very high vehicle yesterday evening, and it was raining fiercely (it’s tropical storm season), and we’d have to transport her across the open courtyard at the apartment. I asked my parents to pray because of these extra complications. The rain stopped completely, and I literally felt God give me strength.
This morning, our usual driver fell through for us, and so we summoned an Uber driver. He was gracious and helpful.
When we got Amaris settled in to her clinic bed for her last IVIG treatment, we quickly realized that her phone had been left in the seat of the Uber car. (Her phone is absolutely critical.) We started praying and had our families praying.
Ezra (from home) went through the Uber contact online to try to report the “personal possession left in the car.” Of course, one complication with trying to call is that the Uber people in MX speak Spanish, not English. Somehow, Ezra was successful, and Uber said they’d get the message to our driver. But that isn’t how God answered our prayer.
No. Before any message came through, the driver had realized he had the phone, and came back to the drop off point. He let the security guard know, who then contacted the clinic desk, and they in turn told us. It was such a wonderful, big answer to prayer. The driver demonstrated he was willing to do it for free, but we gave him a tip, of course… In fact, as I think about it, I realize that that tip money is what dear Indianans gave me as they dropped me off at the airport so early yesterday morning, and rejected the money I offered them. “You might need this extra for something,” they’d said. Yes. Praise God.
We are grateful Anita got to get another massage today. Amaris’ treatment is going just as well as possible today, much better than yesterday, so far.
We had a difficult weekend with very little sleep. But God’s grace carried us through.
Sunday, August 20, 2023 update for friends:
…Every few hours she gets maybe an hour of rest, then Anita and I eat or rest. Other than that one or both of us is beside her, rubbing her tummy or head, playing music or prayer or Scripture recordings for her and of course frequently giving medicine (tablets and some shots), and trying to get nutritional drink or yogurt down her when she’s not too upset or heaving. We’re grateful for every bit of time that these things help her be calm….
She began speaking Mongolian overnight last night–She hadn’t spoken Mongolian in years.
She’s been more at rest more of the afternoon/evening. We are very grateful. Thank you so much for your love and prayers. She has loved the recordings from the voices of ones she knows and loves.
Late Sunday night…
Amaris is in bed asleep(ish? kind of) at the moment. Anita has been working on finishing thank you cards for the staff here. We have an early start tomorrow.
We’re supposed to be at the clinic at 10, for stem cell “injection” (goes into her port). We don’t know if they’ll do anything else.
Please pray for the doctors to have wisdom if anything else should be done for her prior to her return home and that the doctors will have time to communicate with each other adequately. They are all three back now, but two were on extended vacations in the middle of Amaris’ care….
I shouldn’t be so amazed at how God is strengthening and helping us, because you all are praying and loving and lifting, but it has surprised me that Anita and I have been able to exist today on so little sleep. Please keep praying for us emotionally and mentally and physically. We both have head colds and Amaris was starting to have symptoms too, tonight. (We found out Tuesday that it was actually Covid…)
That was also the day for the last in-person consultation with Dr. Omar.
Tuesday, August 22, 2023 update for friends:
…We are encouraged that the medicine is working because of the increase in her mobility of legs and movement of fingers, and this is the first time she has communicated with the doc clearly. And she’s more emotional, expressing herself, even in anger. Very typical Bartonella and PANS reaction to this IVIG treatment. Dr feels she should get more of it to complete the dosage (40 mg more/4 more days — double what she’s had so far, after we’ve been home a few weeks.)…
This is the first time she’s been diagnosed with this (PANS), and doctors knew what to do about it….
We’ve been keeping her nausea at bay by gently massaging her tummy.
Monday, August 28, 2023 update to friends:
Travel day! We leave for the airport at 9 am. No matter how it goes, it will be an exhausting day for Amaris and Anita especially. Please pray for all to have calm nerves. Pray for favor with the flight attendants, as we will be asking for permission to have Amaris’ legs up in our laps during flight. God has been so faithful to give grace for every circumstance, and we are choosing to trust and rest in Him for today’s needs. Thank you for your love, care, and prayers.
At our gate. Hither to hath the Lord helped us! Our Uber driver helped us load our luggage. An airport helper took the luggage to check-in for us. And, of course, we have a wheelchair attendant.
“Thank You, Jesus! I love You! Please help me!”